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Congenital Lesions - Health Info 
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Best of the web

Our medical experts find the best sites covering key medical conditions and problems. They target Australian sites which are informative and easy to read. Sites are rated:
    good * very good ** excellent *** exceptional ****


 

talipes information and parental support group

http://home.vicnet.net.au/~tips/

eMedical rating: 2

This site is a good support group for parents whose children were born with talipes (club foot).
Basic information is provided on the condition, its treatment and implications.
Highlight: real life stories from families affected by the condition.

 

Medical Keywords:

talipes, equinovarus, club foot, family, surgery, plaster, orthopaedics, splint

 

Key Site Features:

  1. Easy to Read and Navigate
  2. Support Groups Listed
  3. Feedback Facilities
  4. Valuable Links
  5. Australian Site

 

congenital heart disease - pediheart

http://www.pediheart.org

eMedical rating: 4

An outstanding site with comprehensive and authoritative information about every aspect of congenital heart disease, including basic anatomy, physiology, cardiac testing and disease descriptions. The level of the information ranged from that suitable for kids and parents, to that targeted at qualified doctors. The quality presentation, especially that of the "Kidzone" section, is another bonus. Some other features include "Ask a question", patients' experiences in "Our kids", and some useful links to other related sites. Definitely worth visiting!

 

Medical Keywords:

Acyanotic defects, aortic stenosis, AS , ASD, atrial septal defect, atrioventricular septal defect, AVSD, coarctation of the aorta , Congenital heart disease, Cyanotic defects, HLHS, hypoplastic left heart syndrome, Patent ductus arteriosus, PDA , PS , pulmonary stenosis, TAPVR , tetralogy of fallot , TGA , total anomalous pulmonary venous return, transposition of the great vessels, tricuspid atresia , truncus arteriosus , ventricular septal defect, VSD

 

Key Site Features:

  1. Medical Detail
  2. Easy to Read and Navigate
  3. Feedback Facilities
  4. Valuable Links
  5. Authoritative Sources
  6. Quality Presentation

 

the congenital heart disease resource page

http://www.csun.edu/~hcmth011/heart/

eMedical rating: 4

An excellent site with a wealth of information. This site contains a very extensive list of congenital heart conditions and syndromes, taken from such authoritative sources as the American Heart Association, National Organization for Rare disorders, and the Texas Heart Institute. Most of the material is user-friendly with an appropriate level of detail for the general public. Other site features include a list of support organisations and internet links. Not to be missed!

 

Medical Keywords:

aortic stenosis, AS , ASD, atrial septal defect, atrioventricular septal defect, AVSD , coarctation of the aorta , congenital heart disease, HLHS, hypoplastic left heart syndrome, Patent ductus arteriosus, PDA , PS , pulmonary stenosis, syndrome, TAPVR , tetralogy of fallot , TGA , total anomalous pulmonary venous return, transposition of the great vessels, tricuspid atresia , truncus arteriosus , ventricular septal defect, VSD

 

Key Site Features:

  1. Medical Detail
  2. Easy to Read and Navigate
  3. Support Groups Listed
  4. Valuable Links
  5. Authoritative Sources
  6. Quality Presentation

 

lung disorders - the children's hospital of philadelphia

http://heart.chop.edu/prof/lngdisor.shtml

eMedical rating: 3

This authoritative information resource provides concise descriptions of a large number of congenital lung disorders. The conditions are not discussed in great detail, but there is enough essential information to give the reader a basic understanding, thereby facilitating more advanced searches in the future. Overall the material is succinct and readily understandable. However, as the conditions are discussed not in any particular order, it may take a little time before the reader finds the relevant information.

 

Medical Keywords:

Bronchial atresta, Bronchogenic cyst, Congenital lobar emphysema, Congenital lung disorders, Cystic adenomatoid malformation, Cystic fibrosis, Ectopia cordis, Empyema, Eventration of the diaphragm, Foreign body aspiration, Lung, abscess, Mediastinal mass, Pectus carinatum, Pectus excavatum, Pneumonitis, Pneumothorax, Pulmonary cyst, Pulmonary hypertension, Pulmonary sequestration, Tracheal stenosis, Tracheomalacia, Unilateral agenesis

 

Key Site Features:

  1. Medical Detail
  2. Easy to Read and Navigate
  3. Valuable Links
  4. Authoritative Sources
  5. Quality Presentation

 

congenital cataract - royal national institute for the blind

http://www.rnib.org.uk/info/congen.htm

eMedical rating: 3

A concise overview of congenital cataract - one of the most common causes of blindness in children in the western countries. The information covers the cause, definition, effects, treatment and prognosis of the condition. This article is presented in an user-friendly question-answer format, and is readily understandable.

 

Medical Keywords:

Blindness, Congenital, cataract, Congenital lesions

 

Key Site Features:

  1. Easy to Read and Navigate
  2. Support Groups Listed
  3. Authoritative Sources
  4. Quality Presentation

 

cleft lip and cleft palate questions and answers - cleft lip and palate association

http://www.clapa.cwc.net/q_a2.htm

eMedical rating: 3

This is an informative site for parents whose children are affected by the relatively common congenital lesion of cleft palate or cleft lip. Here the reader can find plenty of easy-to-read, non-technical information on the anatomy, cause and treatment of the condition. In addition, specific concerns in the child's development, such as feeding and schooling, are also addressed. Parents of children with this condition might wish to find more detailed information elsewhere, but this site is definitely a good place to start.

 

Medical Keywords:

Cleft lip, Cleft palate, Congenital lesions, Feeding, Repair, Social impact, Speech

 

Key Site Features:

  1. Easy to Read and Navigate
  2. Support Groups Listed
  3. Valuable Links
  4. Authoritative Sources
  5. Quality Presentation

 

congenital liver defects - thomas jefferson university hospital

http://www.jeffersonhospital.org/show.asp?durki=4957

eMedical rating: 1

This is an outline of the basic principles of congenital liver defects. There are brief discussions on the types of liver defects, their clinical signs, diagnosis, and treatment. Some of the information is a little vague. However, more specific information (eg. about liver function tests, common symptoms) may be retrieved by following the hyperlinks.

 

Medical Keywords:

Biliary atresia, Choledochal cyst, Congenital lesions, Congenital liver defects, Diagnosis, Jaundice

 

Key Site Features:

  1. Easy to Read and Navigate
  2. Authoritative Sources
  3. Quality Presentation
 
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